Sophea’s Kyphoscoliosis Surgery and Follow-up

 It has taken me so long to post a follow up blog post, mostly because during Sophea’s surgery we kept everyone updated through a Facebook group and I didn’t want to repeat the information. However, it is probably best if I begin with that, it is important for other CMD (Congenital Muscular Dystrophy) and more… Continue reading Sophea’s Kyphoscoliosis Surgery and Follow-up

Sophea’s Orthopedic Appointment

December 7th 2017. Shriner’s Hospital for Children. Sophea’s spine appointment for kyphosis, scoliosis, and lordosis. We have waited months for this appointment. We knew what was coming. We anticipated, agonized even, and then tried our best to put it out of our minds to forget what was ahead- what we were sure the doctors would… Continue reading Sophea’s Orthopedic Appointment