Sophea and the ORANGE

This blog was written so long ago, but I wanted all my stories to be in one place. Happy Orange-aversary Sophea!! I can’t believe this was TWELVE years ago. August 14, 2007 is the worst and one of the best days of my entire life! It started out as an average Tuesday morning. I woke up… Continue reading Sophea and the ORANGE

Sophea’s Kyphoscoliosis Surgery and Follow-up

 It has taken me so long to post a follow up blog post, mostly because during Sophea’s surgery we kept everyone updated through a Facebook group and I didn’t want to repeat the information. However, it is probably best if I begin with that, it is important for other CMD (Congenital Muscular Dystrophy) and more… Continue reading Sophea’s Kyphoscoliosis Surgery and Follow-up

Make A Wish, Sophea!

Make A Wish, Sophea! To say that this year has been crazier than most for our family of 6, is an understatement. I think we went 4 and a half months with a doctor’s appointment every week, on top of the girl’s individual weekly therapy appointments. Many weeks we had 2 additional doctor’s appointments per… Continue reading Make A Wish, Sophea!

Reality of a Diagnosis

I’ve been struggling with how to begin this blog post for a couple months now. So I thought I’d try something a little different. To open, I asked Sophea if there was anything she wanted to include in our blog and my social butterfly was excited to participate: “I feel very overwhelmed with all of… Continue reading Reality of a Diagnosis