Kindergarten. That’s how I ROLL.

Kindergarten. That’s how I ROLL. August 2018: The first day of the school year. The day I began my first job outside my home in about 15 years, the day my firstborn became a senior in high school, and the day my baby entered kindergarten. (And not to leave them out, I also have a… Continue reading Kindergarten. That’s how I ROLL.

Sophea’s Kyphoscoliosis Surgery and Follow-up

 It has taken me so long to post a follow up blog post, mostly because during Sophea’s surgery we kept everyone updated through a Facebook group and I didn’t want to repeat the information. However, it is probably best if I begin with that, it is important for other CMD (Congenital Muscular Dystrophy) and more… Continue reading Sophea’s Kyphoscoliosis Surgery and Follow-up

Make A Wish, Sophea!

Make A Wish, Sophea! To say that this year has been crazier than most for our family of 6, is an understatement. I think we went 4 and a half months with a doctor’s appointment every week, on top of the girl’s individual weekly therapy appointments. Many weeks we had 2 additional doctor’s appointments per… Continue reading Make A Wish, Sophea!

Reality of a Diagnosis

I’ve been struggling with how to begin this blog post for a couple months now. So I thought I’d try something a little different. To open, I asked Sophea if there was anything she wanted to include in our blog and my social butterfly was excited to participate: “I feel very overwhelmed with all of… Continue reading Reality of a Diagnosis

Sophea’s Orthopedic Appointment

December 7th 2017. Shriner’s Hospital for Children. Sophea’s spine appointment for kyphosis, scoliosis, and lordosis. We have waited months for this appointment. We knew what was coming. We anticipated, agonized even, and then tried our best to put it out of our minds to forget what was ahead- what we were sure the doctors would… Continue reading Sophea’s Orthopedic Appointment